Crazy kooky Family Adventures: I LOVE JAMES!

Thursday, April 17, 2008

I LOVE JAMES!

I felt like James wasn't being represented on this blog! He doesn't let me take many pictures, so I had to do some digging! He won't like this at all, but I think he is so cute! I just love him so much! He is the best husband and dad.

Here he is in his many roles as a husband/dad. He is in jail at Alcatraz, in jail in bed after his knee surgery,awesome soccer coach, sporty fisher guy, awesome hiker, clumsy hiker, fireman, and last but not least, our sprinkler system. He works hard every day!

4 comments:

Karri said...: I got in! Yea! I just have to tell you my stomach hurt last night when I got home from laughing so hard. I'm excited to have you make me laugh over blogging! YOu hot mama with your new hair cut!; Thu Apr 17, 11:33:00 AM 2008
Pamcakes said...: you are a good wife to say such things about James. I hope he appreciates it. Tell him he needs to buy you a new shirt now.; Thu Apr 17, 12:02:00 PM 2008
Kjerstin said...: I bet he LOVES having knee surgery pictures up! You're such a nice wife!; Thu Apr 17, 08:30:00 PM 2008
L and T said...: Now we are waiting for a post written by James
Amber we are loving your blog!; Fri Apr 18, 07:04:00 AM 2008

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Osteopetrosis

Osteopetrosis is a rare genetic bone disorder. Averi was born with the malignant infantile recessive gene. James and I both carry the gene and it is passed on through us. Every time we have a child, there is a 25% chance it would have Osteopetrosis. We are very fortunate that Christian and Taylor were born without it. We are not having any more children for fear of this happening to another baby, it was too sad.

Averi was diagnosed at 4 mo. and had to get a bone marrow transplant when she was 5 mo. old. Her older brother Christian was her donor. Taylor also helped out by being very willing and loving. Averi had many, many complications, and she was pretty much on her death bed in the hospital for 6 months.

Osteopetrosis makes the bones very, very hard and it causes a number of problems in the body. Averi is blind because the bones near her optic nerve got too thick and cut the blood supply off to the nerve. She has some vision, but she is still considered blind legally. She is developmentally delayed because she was in a coma for about 5 months during important development milestones. Mentally she is fine, she can count, spell, and play the piano beautifully. Socially she is a little behind, which is also a blind problem. She still eats baby food because she never learned how to eat right and she has many sensory problems. She attends many different therapies to try to help her, and she goes to a regular grade school and has the most wonderful Aide-Renae.

This is just a brief explanation of what Averi had. Here are some links to look at if you want to know more!
http://www.osteopetrosis.org/
http://www.osteopetrosis.co.uk/

Crazy kooky Family Adventures

Thursday, April 17, 2008

I LOVE JAMES!

4 comments:

I love to see the temple

James and Amber Williams

Christian

Taylor Jo

Averi

One of Averi's first Braillings

Blog Archive

Some of our favorite websites

My Blog List

Averi in the hospital

Osteopetrosis

Averri and Renae on Halloweeen.

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