Crazy kooky Family Adventures: Happy Birthday Jimmy Scratcher!

Tuesday, June 10, 2008

Happy Birthday Jimmy Scratcher!

Happy Birthday to my Sweetheart!

Today is James' 34th birthday! I wish I could say we are going to have some huge party, but we have a baseball game to attend for Christian tonight. I just want him to know how much I appreciate what a great husband and dad he is! We are so lucky! We love him very, very much!

2 comments:

thomas family said...: Happy Birthday! Love the pic and how did you come up with 'Jimmy Scratcher' or do I want to know?
P.S. There are a bunch of b-day notes on the family blog :); Tue Jun 10, 02:27:00 PM 2008
Anonymous said...: Happy Happy Birthday Jimmy dear, happy days will come to you all year. if I had a wish than it would be a happy happy birthday to your from me!!
Love, The Adamson Clan; Tue Jun 10, 02:43:00 PM 2008

Post a Comment

Osteopetrosis

Osteopetrosis is a rare genetic bone disorder. Averi was born with the malignant infantile recessive gene. James and I both carry the gene and it is passed on through us. Every time we have a child, there is a 25% chance it would have Osteopetrosis. We are very fortunate that Christian and Taylor were born without it. We are not having any more children for fear of this happening to another baby, it was too sad.

Averi was diagnosed at 4 mo. and had to get a bone marrow transplant when she was 5 mo. old. Her older brother Christian was her donor. Taylor also helped out by being very willing and loving. Averi had many, many complications, and she was pretty much on her death bed in the hospital for 6 months.

Osteopetrosis makes the bones very, very hard and it causes a number of problems in the body. Averi is blind because the bones near her optic nerve got too thick and cut the blood supply off to the nerve. She has some vision, but she is still considered blind legally. She is developmentally delayed because she was in a coma for about 5 months during important development milestones. Mentally she is fine, she can count, spell, and play the piano beautifully. Socially she is a little behind, which is also a blind problem. She still eats baby food because she never learned how to eat right and she has many sensory problems. She attends many different therapies to try to help her, and she goes to a regular grade school and has the most wonderful Aide-Renae.

This is just a brief explanation of what Averi had. Here are some links to look at if you want to know more!
http://www.osteopetrosis.org/
http://www.osteopetrosis.co.uk/

Crazy kooky Family Adventures

Tuesday, June 10, 2008

Happy Birthday Jimmy Scratcher!

2 comments:

I love to see the temple

James and Amber Williams

Christian

Taylor Jo

Averi

One of Averi's first Braillings

Blog Archive

Some of our favorite websites

My Blog List

Averi in the hospital

Osteopetrosis

Averri and Renae on Halloweeen.

.

Total Pageviews

Feedjit