Crazy kooky Family Adventures: HAPPY (late) THANKSGIVING!!!!

Friday, November 25, 2011

HAPPY (late) THANKSGIVING!!!!

I love these cartoons!

I know this isn't a very inspirational post on Thankfulnesses...sorry! I thought this better portrayed my real self!

I hope all ya'll had a very "fulfilling" (ha ha) Thanksgiving day! We ate soooo much!!! I made funeral potatoes with bacon, mashed potatoes, sweet potatoes with marshmallows on top and cranberry/apple sausage stuffing. YUMMY!!!! My mom made the turkey, ham, rolls and salads and Chris and Diana brought pies and green bean casserole. We had enough for 50 people and only 7 adults and 5 kids. WOW! I am still full. It was ALL yum-yum-yum-yum-yum-yum-yum...delicioso!!!

2 comments:

Kam said...: yay! I made the same things you made, except no funeral potatoes. I even made the apple/sausage stuffing (but made mine with dried cherries instead of cranberries). Oh, and I put a pecan crumble on my sweet potatoes, instead of marshmallows. delish. Wow. I'm still in food heaven... may never try dieting/slimming again, after all that yummy-ness!

Funny Thanksgiving cartoons. ha! I miss you... will have to call you next week.; Sat Nov 26, 07:28:00 PM 2011
LeAnn said...: The cartoons are so cute. The Thanksgiving dinner sounds scrumptious and I miss and love you all.
Mom; Mon Nov 28, 01:14:00 PM 2011

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Osteopetrosis

Osteopetrosis is a rare genetic bone disorder. Averi was born with the malignant infantile recessive gene. James and I both carry the gene and it is passed on through us. Every time we have a child, there is a 25% chance it would have Osteopetrosis. We are very fortunate that Christian and Taylor were born without it. We are not having any more children for fear of this happening to another baby, it was too sad.

Averi was diagnosed at 4 mo. and had to get a bone marrow transplant when she was 5 mo. old. Her older brother Christian was her donor. Taylor also helped out by being very willing and loving. Averi had many, many complications, and she was pretty much on her death bed in the hospital for 6 months.

Osteopetrosis makes the bones very, very hard and it causes a number of problems in the body. Averi is blind because the bones near her optic nerve got too thick and cut the blood supply off to the nerve. She has some vision, but she is still considered blind legally. She is developmentally delayed because she was in a coma for about 5 months during important development milestones. Mentally she is fine, she can count, spell, and play the piano beautifully. Socially she is a little behind, which is also a blind problem. She still eats baby food because she never learned how to eat right and she has many sensory problems. She attends many different therapies to try to help her, and she goes to a regular grade school and has the most wonderful Aide-Renae.

This is just a brief explanation of what Averi had. Here are some links to look at if you want to know more!
http://www.osteopetrosis.org/
http://www.osteopetrosis.co.uk/

Crazy kooky Family Adventures

Friday, November 25, 2011

HAPPY (late) THANKSGIVING!!!!

2 comments:

I love to see the temple

James and Amber Williams

Christian

Taylor Jo

Averi

One of Averi's first Braillings

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Some of our favorite websites

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Averi in the hospital

Osteopetrosis

Averri and Renae on Halloweeen.

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