Crazy kooky Family Adventures: TO OUR NEIGHBORS-

Monday, December 19, 2011

TO OUR NEIGHBORS-

Dear Neighbors (Bishop),

First of all...I hope you know how much we love you guys!!! We love being your neighbors and we love how awesome you are! (yes-I am kissing up)

Secondly...the wreath incident wasn't really an "incident"! We like to use anything possible as an excuse to be lazy and not decorate our yard. We know you didn't intentionally buy your wreaths bigger than ours!

Thirdly...I am such a dork sometimes! Please know that I am sometimes too obnoxious for my own good.

We really couldn't have hand picked better neighbors!!! We are blessed to know you!
Love,
Amber

1 comment:

LeAnn said...: Way cute and I needed a smile for the day. I am still praying you can come for New Year's; we will have lots of fun and I need you for that very reason.
Love you much! Mom; Fri Dec 23, 10:03:00 AM 2011

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Osteopetrosis

Osteopetrosis is a rare genetic bone disorder. Averi was born with the malignant infantile recessive gene. James and I both carry the gene and it is passed on through us. Every time we have a child, there is a 25% chance it would have Osteopetrosis. We are very fortunate that Christian and Taylor were born without it. We are not having any more children for fear of this happening to another baby, it was too sad.

Averi was diagnosed at 4 mo. and had to get a bone marrow transplant when she was 5 mo. old. Her older brother Christian was her donor. Taylor also helped out by being very willing and loving. Averi had many, many complications, and she was pretty much on her death bed in the hospital for 6 months.

Osteopetrosis makes the bones very, very hard and it causes a number of problems in the body. Averi is blind because the bones near her optic nerve got too thick and cut the blood supply off to the nerve. She has some vision, but she is still considered blind legally. She is developmentally delayed because she was in a coma for about 5 months during important development milestones. Mentally she is fine, she can count, spell, and play the piano beautifully. Socially she is a little behind, which is also a blind problem. She still eats baby food because she never learned how to eat right and she has many sensory problems. She attends many different therapies to try to help her, and she goes to a regular grade school and has the most wonderful Aide-Renae.

This is just a brief explanation of what Averi had. Here are some links to look at if you want to know more!
http://www.osteopetrosis.org/
http://www.osteopetrosis.co.uk/

Crazy kooky Family Adventures

Monday, December 19, 2011

TO OUR NEIGHBORS-

1 comment:

I love to see the temple

James and Amber Williams

Christian

Taylor Jo

Averi

One of Averi's first Braillings

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Averi in the hospital

Osteopetrosis

Averri and Renae on Halloweeen.

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